A place for me

I've started this blog so I'd have a place for my thoughts and feelings as our family deals with kidney cancer. We have a caringbridge page for Dennis that's used to update our family and friends on his condition. If you want, you can visit his page by clicking here. I write updates about his health, his treatments, when he has scans, side effects, etc. Most times I don't include my true feelings because I don't want to use his site as place for me to whine, vent and complain. It's not about me, it's about Dennis. Also, I don't want our family and friends to worry about me due to something I write on his site, and I know there's a few who will. Honestly, I don't want to deal with the phone calls and prying questions which will result from me offering too much info.

At the moment we're still waiting for information about assistance for Votrient. The last we heard was talk of 50% or free. Uh, free please! We need to know soon since Dennis only has enough pills to last through Tuesday. He has labs Monday so I hope to hear something during the visit.

I finally talked with someone in HR Thursday afternoon. She knew I was upset since I was on the verge of tears, but thankfully I kept it together. She talked with someone from the insurance company but she didn't sound hopeful. Unfortunately, I probably wont hear anything different than what I already know. To make matters worse there's another kidney cancer drug that's on the tier 4 list, Afinitor. I'm so pissed off about this. If we can't get assistance for either Votrient or Afinitor, that's two drugs he wont get to take unless it's in a trial. Sutent is a tier 3 so I'm guessing that would be the next drug if we can't get assistance.

Sucks to learn you're underinsured!